Thursday, December 23, 2010

"Here comes Santa Claus ..."


Two days to go until the big guy in the red suit arrives to delight all of our children. Ashley and Dane are still believers - or at least that's what they tell us! They are getting very excited and it's wonderful they are all so healthy at this special and busy time of the year.

We will post a new update after X-mas ... time is running out and there are still many things to do before the big day. From our family to yours, best wishes for a magical holiday season.

Warmly - The Hantschers

ps Enjoy the 2010 X-mas photo!

Monday, November 15, 2010

"Busy ... Busy"



So, yet another headline to "excuse" my blog writing delay. Life is truly very busy these days ... such is fall when you have kids playing winter sports. A quick recap of the past month and some cute pics as well ...
Start of another cycle
Dane had his monthly chemo treatment and every three month spinal tap procedure last week. The good news is his neutrophil count rebounded from October so we remain at 100% chemo dosages and don't have to go back to clinic until early December. The bad news is the past five days have been "steroids" and you all know by now that is our least favorite time of the month. He did pretty well this go around ... a couple of down days in the middle but today he seems more like his normal self. We are on the countdown of spinals ... I think he only has six left until he finishes this gig once and for all in May 2012!
Early champions
Both kids were entered in pre-season tourneys and just to be sure neither was outdone, each of their teams won the gold medals/championships. Ashley's team is off to a wonderful start - they are 7-0 and really having a great time. She's skating fantastic and playing solid "d". Dane's team is 8-2 and bonding like crazy. In between many ice times they are finding time for lots of fun activities ... swimming parties, street hockey pancake breakfasts and Moose games. All in all - the season is off to a super start.
18 months
It's hard to believe but our "little" Clare is already 18 months old! She is soooo much fun and in our biased opinions absolutely adorable. She has really found her voice - the talking is taking shape and to our dismay, she has screaming down to a science. Not much of a surprise - her favorite word is "NO" and she says it with conviction. She is officially a rink rat and we are looking forward to trying her out in bob-skates this winter on our backyard ice.
Working for a living
It's two months today that I went back and all is going pretty well. It's definitely a balancing act with three kids but everyone is doing their part to manage the "chaos". Dirk is really enjoying his new job at Hydro and his return to the technical side of engineering.
Looking ahead
The rest of this month and December will be filled with more hockey & ringette. Dane's team is entered in a tourney in Minnesota in a few weeks that should be tons of fun. And of course it's prep time for x-mas ... always a busy, busy time of the year!
Hope life is good - Janie & Dirk

Tuesday, October 12, 2010

"Where have we been?"

These days I feel like a student with a very overdue assignment. I know I need to get my "work" done but I just haven't been able to get to it. After a couple of weeks of procrastinating I'm giving myself a proverbial kick in the butt tonight and posting our news from the past several weeks.
Since I last wrote Dane has had two monthly chemo treatments. One was mid-September and the other was just this morning. He continues to feel pretty well and his blood counts remain decent. Today's neutrophils are a little lower than usual and not optimal, so we have to return to the clinic in two weeks for a follow-up blood test. The good news is his hemoglobin has rebounded (it was a bit lower in Sept) and is sitting in the middle of the normal range. Bodes well for hockey ... I'll get to that update in a minute. The next week will likely not be ideal - the steroids have been affecting him more in recent months. September was brutal and scary -Dane was really emotional and down. We are hoping it was a "blip" due to all the changes in his life and that this month is better. All of us and his oncology team are anxious for the next seven days to be behind us.
We spent much of September and early October in the rink as Dane and Ashley participated in evaluations for A1 hockey & district (A) ringette. In both their cases, energy = effort = positive results. Ashley was successful in her skates and very pleased her hard work landed her on the district team with her BFF. After a bit of a sluggish start (tryouts began the week of Dane's last chemo treatment), Dane hit his stride and for the second year is playing the highest level of hockey for his age. He is really happy with his coaches and players and is already making new friends. Although it's very hard to go through the process, it's all made worthwhile when you see the kids branch out of their comfort zone and develop new friendships. We were really fortunate last year to meet some great new people and we are looking forward to this year being the same. The next couple of weeks are filled with practices and a couple of tournaments and then league play starts in late October/early November.
My return to work in mid-September went pretty smoothly. I didn't enjoy the first few days and I really, really missed the kids. Having Dirk in the same building was a big help and as much as I thought the car pooling would drive us both crazy, it's actually working out well because we get to catch up to & from work every day. Once I got over my loneliness, I started to shift my mind-set back to the world of Hydro and building dams and I actually began to "enjoy" work. Intuitively I knew it was time because I'd been home for too long with my complete focus the kids and Dane's illness. Of course I still think about it when I'm at the office, but I have a job to do and that requires a different kind of focus. Probably the hardest part of returning was getting over the "nagging" feeling the other shoe would drop if I let my guard down and returned to the world of the "living" as I describe it. I know it isn't logical, but it's how I felt. Now that I've been at it for a month, I'm past that fear and know it's best for everyone that I be employed again. Clare has adjusted really well to her nanny and we are so thankful to have such a kind and warm young woman looking after the kids.
Late September was our time to remember Cole and how his presence, even for such a short time, enhanced our lives. The kids still have their moments when they are sad their older brother is not here, but we remind them his gift to them is to live in the moment and be happy. We know that is what he would wanted for his special siblings.
I will sign-off before my ability to articulate really abandons me. I'm pretty tired tonight - this working for a living is definitely an adjustment!
Until next time, take care - Janie & Dirk

Saturday, September 11, 2010

Dragon Boating Finals

The email has arrived ... we finished near the top of the pack after our two races today. We had an awesome day and for the first time in the team's history, clocked two races under 2:00. Based on our results, the following is our time for tomorrow:
Time: 12:40 pm (approximate)
Division: Mixed Recreational, Division I
Heat: AA
Lane: 2
Team: #40 - Paddlestar Gallactica
We will also be speaking at the Closing Ceremonies at 4:00 pm in the Beer Gardens (where else)!It's supposed to be a beautiful day and we'd love it if you could join us as we paddle our hearts out in support of the CCS and celebrate a wonderful group of people's contribution to a great cause.
Thank you and good night. Time to rest some tired bodies!
Janie & Dirk

Tuesday, September 7, 2010

"September is ..."

This month is significant for many reasons, several of which I'll detail in today's entry - "September is ... "
- Childhood Cancer Awareness Month
All across the world, the message is getting out that September is CCAM. The reading I've done on the Internet is fascinating and makes me realize we are part of such a larger community. One of the neatest things about CCAM is some soul has launched a Facebook campaign to get Oprah to do a show about childhood cancer. It was started just a few days ago and has nearly 5000 members already, me included. Lets hope the message is heard loud and clear.
- Back to ... everything
Tomorrow is day one of structure, oh, I mean school. Ashley and Dane start grades 4 & 5 respectively, officially both in middle school. The backpacks are ready, the outfits picked out and the spirits mixed. Ash is definitely ready ... Dane, well he could wear a bathing suit 12 months of the year! I on the other hand really, really need them to get back to routine - nine weeks of togetherness has us all a bit on edge. Clare is not going to know what's up - she is so used to her big bro & sis being around all the time.
I return to work in a week so another big adjustment for the entire family. Clare's nanny is gearing up to start work and we're hopeful for a smooth transition.
The winter sports have kicked into high gear. Hockey & ringette camps are filling our evenings and weekends, but we love being back at the rink.
- Dragon Boating
We finished our third and final practice last night and it was the toughest one either of us can remember. Wow - we have some sore muscles and butts today. It seems finishing 2nd overall last year has the team thinking we need to improve?!? If you are interested in watching an exciting and emotional event, we are team #40 - Paddlestar Gallactica and our Saturday race times are as follows ...
1st race - Heat W - Lane #1 - Approx time 1:50 pm
2nd race - Heat YY - Lane #2 - Approx time 5:20 pm
We won't know Sunday's final time until later Saturday evening (I will post the final that night).
We are the honorary spokespersons for this year's Festival and will be speaking at the Opening (noon Saturday) & Closing Ceremonies (4:00 pm Sunday). Seems pretty appropriate September is CCAM and this event is taking place this month.
If you'd like to support our fundraising, please see the link I included in my last blog update - Thanks!!!
- The Half-Way Mark
A month or so ago when I couldn't fall asleep one night I did the math in my head re: Dane's treatment. He was diagnosed Jan 6, 2009 and will finish May 8, 2012, a total of 40 months to rid his body hopefully once-and-for-all of this nasty leukemia. Well, it's September 7, 2010 and officially month 20 or the half-way mark of our family's journey. When I figured this all out late that one night it was an overwhelming feeling. Realizing how far we've come since that awful January night is pretty amazing, yet knowing we still have just as much time to go is cause for some angst. We will make it though - Dane is just too tenacious, spirited and downright stubborn to let cancer beat him!!!
Take care - Janie & Dirk

Sunday, August 29, 2010

A Summer Photo Essay

Well, it's August 29 and in ten days Dane & Ashley will make the trek back to Oakenwald to start grades 4 and 5. Dirk heads to Hydro for Day 1 of his new job tomorrow and the countdown is on for me ... Sept 15 is my return to the working world after a nearly two year hiatus. We've packed a lot of fun into the past two months that I'll recap with some recent photos ...


Look at me ... I'm kayaking! Never to be left behind her big bro & sis, Clare stepped in but never quite made it away from the dock. Check out that tummy!

Although not in this picture, the kids took it one evening at the lake in July. It's got to be one of the best sunsets we've ever seen.



August Long weekend ... fun to be had with Scott, Karen & Marshall visiting from NB. Based upon Marshall's idea, Scott & Dirk's carpentry, Karen and the kids' creativity and G&G's babysitting, we ventured out on the "Pirates of Lot 9" craft for some water excitement!


Pre and post 18 holes of golf with Cam Barker, Dane's generous and gracious host for the Believe in the Goal Invitational Golf Tourney. Dane had an amazing time ... we're not quite sure if Cam will recover from the trauma of Dane's driving, but we are hopeful! Top photo is Dane and Mason dropping the ceremonial puck to kick-off the event. When I get the photos from the professional photog we'll post some of Dane coaching with Jonathan Toews.

Dane's CCMB buddies hanging out in Souris during a very fun but chilly August weekend. Four of the five kids in this photo are kickin' leukemia's but and our host Jessie (far left) has recently beaten her fight with lymphoma. Way to go gang and LOVE all the new curls!!!!



Ashley, Dane & Clare with lake Superior in the background. This one was taken earlier this week during an end-of-summer get-away to Duluth and Minni for sightseeing, lots of swimming and some shopping.

Well, that's July & August in a nutshell. On the medical front, Dane started his fifth Maintenance cycle in mid-August. He has felt great all summer long and we can really notice the return of his strength, stamina and muscle tone. His blood counts have been excellent so he has remained on 100% dosages of all his meds. He and Ashley strap on the skates this week for hockey and ringette camps and we are anxious to see how they fare.

Late August and early September also signifies dragon boating season. As was the case last year, we are paddling on team Paddlestar Gallactica. If you are interested in supporting our cause, the following is the link to our personal page. Our team captain and me are the honorary spokespersons for the event this year. Apparently our team spirit (aka loudness and time spent in the beer tent post races) and Dane's story caught folks' attention in 2009!

http://convio.cancer.ca/site/TR/Manitobathirdpartyevent/DRAGON_MB_Winnipeg_?px=2893401&pg=personal&fr_id=8520

Hope summer has been good to everyone - Janie & Dirk

Friday, August 13, 2010

"Seeing is Believing"

Just time for a quick update and posting of a picture from this week's "Believe in the Goal" activities. It's been a whirlwind three days which I will recap in more detail in my next update when I'm not prying my eyes open with toothpicks. Suffice to say Dane had an AMAZING time as the NHL Experience child and the highlights included golfing 18 holes with Cam Barker, dropping the puck and co-coaching with Jonathan Toews!
Great people united for a great cause ... helping kids & adolescents fighting cancer.
Take care ... Janie & Dirk

Tuesday, July 20, 2010

"Is he a celebrity yet???"

We're thinking that three CTV stories in eight months has likely "elevated" Dane to a local celebrity but we're certainly not telling him that! And we think after this many tries he might just be getting the hang of how it's done ... the first time all he did was nod; the second story he muttered one word answers and yesterday's piece he nodded, smiled and wait for it ... gave a two word answer! He also obviously poked at one of the hockey stars a bit before the press conference as is evident by Travis' quote about Dane reminding him Jersey went out in the first round - again! Our boy is sure subtle ....
So, in case you didn't catch the story, here is the link to the Believe update that aired July 19. The footage is from the press conference held back in June and it's meant as a lead-up to the big game on August 12. It should be a great couple of days and if you are interested in tickets, they are just $20 and available through Select-A-Seat at at local Dairy Queen stores.
The first three weeks of summer have been really good. We've been at the lake for most of it and enjoying some pretty good weather. Dane had his monthly IV chemo appt today. It was long but went not too bad. He was a bit more stressed than usual about the IV ... that's the "double-edged sword" of going infrequently. Needles became second nature for him when he got so many that he didn't even flinch but now he gets a bit more worked up because he kind of forgets from month-to-month. His neutrophils are only .51, so just high enough to keep going at 100% dosages. The oncologist figures it's because he's had a congestion virus for the better part of three weeks so she's not worried. It means a trip back though in two weeks for blood work but that's just a finger poke so he should manage ok. Today is day one of "roid rage" week so we're bracing ourselves for the inevitable emotional roller-coaster. The good news is he should be fully recovered for our next stint at the lake and all the Believe activities.
The change of pace has been nice for Ashley. As much as she loves school, a break from routine and academics is welcome. Clare is "going" even more than last month ... we think she is going to be a handful.

Take care and hope the summer is treating you well - Janie & Dirk

Wednesday, June 30, 2010

It's Summer and we "Believe"!


Wow - it's been an entire month since my last update! June has been crazy busy and we are all very ready for some quality time at Pickerel Lake. The forecast is looking a bit better so we are optimistic mother nature knows we have high expectations this year. None of this rain and cool weather we experienced last summer - we want sunshine!
Dane continues to feel really well. Last week was his heavy treatment week so physically, mentally and spiritually he was not himself. However he has rebounded nicely and is really pumped to get to the lake. I think he knows how lousy he felt last year and is looking forward to enjoying all his favorite activities with enthusiasm and energy. He has already proclaimed he will be tubing by tomorrow. He doesn't have another treatment until July 20 so we are in the clear for a few weeks. This is awesome because you may recall last July and August we were at the Clinic a ton as he was in the last two months of the intensive phase.
Dane and Ashley's trip to Camp Arnes a few weeks back with CCMB was fantastic!! They made sure they did all the activities and it doesn't sound like they missed us one bit. We know they will be at the top of the sign-up list when 2011 rolls around. My 20km walk on June 12 was equally special. A heartfelt thanks to Jodi, my partner and BFF. We proved that that distance can be done in pretty good time (3.5 hours) even when you don't train and you talk the entire time. Between us we raised over $4000 for the Foundation and I am very appreciative of the generous donations.
We have been very busy working behind the scenes for the Believe in the Goal Foundation. This is the organization that sent Dane to Vancouver in March to watch the Canucks play the Sharks. Believe's marquee event is the SuperStar Summer Showdown. It's August 12 and will feature many huge local stars, including Jonathan Toews, Nigel Dawes and Travis Zajac. The Press Conference announcing the game was yesterday and that's when this awesome photo was snapped. Dane also got the surprise news he will drop the puck at the game ... he's pretty pumped! I'll post more details in an upcoming blog but in the meantime here is a link to the article in the WFP this morning. There is also a very touching story on Shaw TV that features Todd's mom and player friends ... just go to ShawTV Winnipeg and click on Wednesday June 30 stories.
Spring hockey & ringette are down - yeah - and we have no skating until late August. We are all looking forward to the break. There will be many laps swam at PL this summer to keep up the kids' stamina and work those leg muscles. This is really good for Dane to counteract the various drugs he continues to take.
Ashley and Clare are doing well. Ashley is glad to be done Grade 4 ... the last couple of months were tough on her. Likely an accumulation of all the stresses she's had to deal with. Clare is basically a going concern, with "going" being the operative word. She is everywhere and into everything! She also has quite the temper and voice ... watch out when she doesn't get her own way.
Hope all is good in your world and enjoy the next few days ... It's Summer and we "Believe"!
Janie & Dirk

Friday, May 28, 2010

"Some days are more of a challenge"

If there is anything I've learned the past 16 months, it's that a cancer diagnosis and the treatment that follows is a long and winding road. Many days are great and we park the fact that Dane's body has an invader that threatens his health. Others are so-so, either because he's not feeling that well from a treatment or one or more members of our family are just not doing all that well dealing with the realities of his leukemia. And then there are the really hard days, the ones where the brutal truths of childhood cancer smack us in the face.
The past few days fall into the latter category because we had to say good-bye to another young soul from the cancer community. Two weeks ago little Tristin (aged 2 1/2) lost his courageous battle with cancer. After an overwhelming 18 months of treatments, hospitalizations and surgeries, his parents and the medical team thought he was on the road to recovery. However, he became ill at home in Thompson MB and a MRI revealed he had a large and aggressive brain tumor. He passed away within 24 hours, leaving behind a grieving mom, dad, big sister and extended family. Over the past year or so, we came to know Tristin and his family quite well. His dad works for MB Hydro, so we shared that in common. Dane took a strong liking to Tristin and during clinic visits, they would sit together and watch videos on the portable DVD player Tristin took everywhere with him. He was on the ward for much of this winter so we didn't see them much but four weeks ago we ran into the entire family at the Clinic. They were so optimistic and Dane and Ashley were both excited to get in a short visit with this special little boy. We think of his family often and although we know we can't erase their pain, we sure wish we could.
We have several Cancer Care MB events coming up in the next few weeks ...
- June 4 the kids and I will join many other Clinic families and participate in the 2nd annual Kendra's Walk
- June 5 Dane and Dirk are taking part in the Fishing for a Cure event on the Red River
- June 11 - 13 Ashley and Dane are attending Camp Indigo. It's a three day event at Camp Arnes sponsored by the Foundation for patients and their siblings and this is our kids first time (last year was cancelled because of H1NI)
- June 12 I will be walking 20 kms with my best bud Jodes in the Challenge for Life. All funds raised stay in Manitoba and support the Foundation. My heartfelt thanks for the generous support I've received from family & friends.
- June 25 Dirk and Dane are attending a car show that supports CCMB
On a similar but different note, we heard yesterday that the organizers of the annual dragon boating festival have submitted our team as one of the stories that Shaw will feature this year. It will likely be a few weeks until the story is produced, but as always, I will provide the link once it's available. I know our team captains are pumped about the exposure! Dirk and I have committed to "Race the Red" again this year in support of the Cdn Cancer Society and as such, will hit the river in mid-September. I'm thinking after a 20 km walk a few races won't be that bad (yeah right)!
It's amazing how blog writing lifts my spirits. Already I am feeling a little brighter ... until next time, take care - Janie & Dirk

Thursday, May 13, 2010

"Inspirations"

Throughout he past sixteen months, I've written about the different children and adolescents that we have come to know because of Dane's journey. Although we wish our son and all of these special people would never have been inflicted with cancer, our lives have been enriched by them. I marvel at their strength as they undergo treatments, take medicines on a continuous basis and just accept and live day-to-day with their conditions. Almost more remarkable though is their maturity beyond their years, their passion to improve the lives of others living with cancer even while battling for their own and their wisdom to know that just one person CAN truly make a difference. They are INSPIRATIONS and in my words, this is why ...
- Kendra McBain (RIP December 2009)- While battling a rare sarcoma that surfaced one too many times to conquer, she organized the first Kendra's Walk for Kids in May 2009 at SJR School. Over $160,000 was raised in her quest to refurbish the "Teen Room" at CCMB to provide a haven for other youth fighting cancer. Kendra's dream was that her Walk would be an annual event and her family is carrying on her legacy. On June 4, our family will join many others from the Clinic as we walk in memory of a young woman who had incredible vision and courage.
- Todd Davison (RIP December 2006) - Like Kendra, Todd was diagnosed with a sarcoma that was too difficult to treat. An amazing junior hockey player, Todd's dream was to see fellow players take to the ice in Winnipeg to raise funds for cancer. The first Sizzlin Summer Showdown was held the summer before he passed and by last year it had grown so much it moved to the MTS Centre. Todd founded the "Believe in the Goal" Foundation before he passed away and the money raised goes toward making other kids/teens with cancer more comfortable and providing NHL experiences to kids with cancer who are huge hockey fans. Of course Dane was the recipient of the NHL experience this past March when we travelled to Vancouver and we are so grateful. The 2010 SSS is being held August 12 at MTS Centre and we'll be sure to post updates as we have more details.
- Jessie - One of Dane's best buds from the Clinic, this young woman has recently won her battle with lymphoma. She is not from Wpg so during her family's many, many visits to the city, they stayed at Ronald McDonald House. Given their outgoing and friendly personalities, we weren't surprised to hear she was asked to be in their annual Fashion Show last week and to grace many McDonalds around the city on May 5 in support of McHappy Day (RMC was this year's chosen charity). She is a young gal with a lot of poise and we are sure she made a wonderful ambassador for the House.
- Ryan - A teenager battling the same kind of leukemia as Dane, Ryan and his family are constantly giving back to many organizations within Wpg that support sick kids. He helps at Variety, was on the Children's Hospital Telethon and this Saturday May 15, is helping spearhead a drive to raise $1,000,000 pennies for cancer. The event is at the Forks from 10 am - 3 pm so if you have time and pennies, please consider dropping them off and saying you are a friend of Dane's. We'll be there armed with the kids' change around 12:30.
- Hayden - Dane's Clinic buddy from the get-go, Hayden's wish trip was sponsored by the Rainbow Society. His family has given back to this wonderful organization by being the feature family in several PR pieces, including being special guests at the annual fundraising dinner last weekend. Way to go Hayden!!!
- Troy, Zoe, Maya and Jesse - All are inspirations for toughing out what is a difficult road to long-term Maintenance. I'm pretty sure they have been doing some amazing stuff along the way, including graduating from high school with honours (way to go Zoe & Troy)!
- Noah Polansky - Although I've never met this young man, I have heard his story and marvel at his commitment to a cause. He does not have cancer, however his mom had breast cancer a few years ago. When she was diagnosed he rallied and set a lifetime goal to raise $1 million for cancer research and treatment. Like Jodes and me, he is participating in the June 12 CCMB Challenge for Life and has challenged kids at local schools to hold fundraising walks in support of his walk. Ash & Dane's school - Oakenwald - is holding its walk tomorrow and I'll join the kids for this inspirational jaunt through the neighborhood.
- Our kids - Through their willingness to be part of the CCMB's Campaign, Ashley & Dane did a great thing for the Foundation. These days Dane tries pretty hard not to think about his leukemia, but based upon previous conversations, I'm sure he has something in mind closer to when he finishes treatment in 2012 as his way of giving "back."
Dane's leukemia experience has taught me many lessons that I will hold onto for the rest of my life. In this case it's that no matter how high the mountain seems, we shouldn't hold back if we believe in a cause. Our family knows firsthand that the organizations that benefit from these causes really do change and save people's lives.
Thank you to these inspiring young people ... Janie & Dirk (for all the Hantschers)

Monday, May 10, 2010

"Happy 1st Birthday"

Happy Birthday to you ...

Happy Birthday to you ...

Happy Birthday dear Clare ...

Happy Birthday to you!

Ashley and Dane wish their sister Clare Avery a special 1st Birthday (May 11, 2010). You brighten our days more than we ever imagined possible.

Love your mom, dad, Ashley & Dane

P.S. We LOVE and see you too!

In case you didn't happen to see the Winnipeg Free Press this past Saturday, these are the two pictures and the write-up we included for our special sister and daughter. She is enjoying her last sleep before the big day ... very tired from all her walking!!!

Good night ... Janie & Dirk

Saturday, May 8, 2010

"May 8, 2012"

"We interrupt regular programming for this brief but important message ..."
If you are a faithful blog follower, today's headline might sound familiar. Yes, it's a bit of "deja vu" because I used this exact same title one year ago today. It's a very significant day and an anniversary of sorts. It was 12 months ago that Dane began Interim Maintenance - the third phase of his treatment and the one that started his three year treatment clock ticking. It's very hard to believe an entire year has passed by and what seemed like an eternity - a 3.5 year treatment cycle - is now down to two years. It's still a long way to go but the end gets closer with every passing month. He has nearly completed 3/11 cycles in the long-term Maintenance phase and cycle 4 begins May 26/27. Each cycle last 84 days and is filled with lots of drugs, all of which he continues to handle really well.
So today we reflect on what he has survived, conquered and accomplished in the past sixteen months and look ahead to hopefully two years of "routine" treatment. Dane will be ten when he finishes and if you are a "gambler", you can bet on one-heck-of a celebration in May 2012!!
Good night ... Janie and Dirk

Monday, April 19, 2010

"Spring Clean-up"

Hello everyone,
Is it Spring? I'm not sure because it actually feels more like summer in Winnipeg these days. In fact, the past couple of days have been nicer than most July & August days last year. We can only hope this is a sign of what is to come for the next few months. On a selfish note, I am really hoping for amazing weather because it will be my last summer off with the kids before I go back to work in mid-September. Pickerel lake is calling our names this year.

So given all that has been going on around here lately, "spring clean-up" seemed like the most appropriate title for this entry. Yep, I still lay awake at night thinking of the next headline.
Here's the scoop as of late ...
"A Wild Ride"

When I last wrote, we were prepping for a few day jaunt to Minneapolis to watch our third Sharks game since January. Our favorite contact in San Jose, Erin, had arranged for seats in a private suite with kids from a Minnesota organization called "Hope Kids" (children with significant medical issues). If that wasn't enough, when we arrived at VIP Will-Call, Dane and Dirk were whisked away to sit on the SJ bench during the pre-game skate. Minus the crazy bike helmets they had to wear (LOL) it was a great experience. Big Joe was actually injured that week so he didn't play, however that disappointment was erased when he plunked himself down beside Dane on the bench. Crazy!!! Erin says we've met Joe more times in the past three months than she's seen him in five years. The SJ coach even came out, shook their hands and thanked them for being such great Sharks' fans. Dane got the inside scoop on Joe's injury and when he'd return to action. It's now play-off time of course, so he is glued to the TV set when SJ is playing. We let him watch last night's game because he didn't have school today, however it was such a heart-breaker I didn't know what he would do. SJ had 51 shots and lost one minute into OT when they basically scored on their own net. Hopefully they recover tomorrow night. Something has gone hay-wire with blogger.com so I can't post this great picture of Dane with the Wild mascot in the suite. I'll try again next time otherwise I might loose it on my computer tonight.
Our many thanks to our wonderful US hosts, Tricia & Matt, for letting us stay at chez Iten-Maly for a couple of fun filled days & nights.

"Cleaning House"
For the past several weeks we have literally been cleaning our house. After a one year wait due to Dane's treatment, we finally finished the basement. This might not seem like a big deal to some, but to us it was huge because it meant moving large pieces of furniture (aka an 800 pound piano) out of the den to make room for Dane to move into his new digs. He and Ashley had been sharing a room for five months and that was getting VERY old for everyone. Now all the kids have their own rooms again plus lots of new space downstairs to play and hang out. The house seems much larger and quieter and that's a great thing. Every day I tackle another "closet clean-up" and fortunately the end is in sight. IKEA's stock was severely depleted when we went to Minni and Dirk has hardly protested about all the furniture assembly he's had to undertake.
"Four Week Pass"
Although Dane's counts were lower at his appt than the month before, they were still great so we got another four week reprieve from the Clinic. He has been feeling super and I'm hopeful when we head there next week for his once a month chemo that his levels will still be up. If so we won't have to go back until late May and he will be thrilled. The monthly steroid boosts are still nasty, but at least we can "crystal ball" when they are going to kick in and make him hungry, cranky and emotional. We have learned to tip-toe around him for several days until the "mood" passes.
"On the Go"

The kids' spring activities have kicked into high-gear the past couple of weeks. Dane is playing 3x3 hockey, flag football (first time) and swimming. Ash is playing 3x3 ringette, swimming and taking musical theatre. Dane was pretty pumped at the first flag practice when he was picked to be the running back for the first few games. This was due to his speed & agility and the coach was pretty surprised to discover the kid he was praising for his "moves" is the one undergoing leukemia treatment. He plays his first game this Sunday at Wpg stadium and he's very excited. After telling me for quite some time she wanted to do other "things" besides ringette, Ashley is excited to be testing her drama skills (however we do tell her this happens at home on a pretty frequent basis - she is ten after all).
"Almost One"
It's hard to believe but Ms. Clare is going to celebrate her first b-day in a few weeks. May 11 is the milestone and this mom has to get her act in gear to plan something for her. She is not walking yet, but crawling like a machine and running beside and between the furniture. She can stand on her own when she wants to and she's likely only a couple weeks away from really cruising. She is still NOT sleeping through the night on a regular basis, however I get the odd night where she goes from 9:30 - 6:00 or so. I live for those nights! Hope you like the latest photos taken in the past couple of days.



















"Wish Coverage"

Shaw TV produced a story about Dane's wish trip to San Jose. It aired last week and was on the website. I checked today and it's off the main page, however apparently as of tomorrow it can be accessed under the "Viewer Favorites" tab on the website. If you want to watch it, just go to Shaw TV's website and look at that tab. It's about a four minute piece ... the reporter did a very nice job capturing the essence and thrill of his wish.
"40 Down ... 40 More??"

I'm officially in the next decade now and my angst of turning 40 has come and gone. I can't stop the clock so might as well live with the inevitable. Thanks to everyone who passed along b-day wishes, they were very much appreciated. My partner in crime Jodi and I are slowly training for the 20 km Challenge for Life on June 12 in support of CCMB - you may recall from an earlier post this is my 40th b-day present to me. Weather like this is making our "prep" walks much easier so let's hope it sticks around. The following is a link to my page for the walk if you are interested in supporting this wonderful cause ...


Well, it's now officially my bedtime. We hope everything is great in your world. Until next time, take care ... Janie & Dirk

Tuesday, March 30, 2010

"Canuck Crazy"


































Vancouver was amazing!! We visited the sunny West Coast (it was pure blue sky the entire time we were there) from March 18 - 21 courtesy of the Believe in the Goal Foundation. Here's a run-down of the many trip highlights ...

- Limo rides to & from the airports in Wpg & Vancouver. The kids thought this was pretty cool and we reminded them it was VIP treatment!
- Arriving in Vancouver early enough on Thursday morning to catch the SJ Sharks' morning skate. Dane hung over the gate waiting patiently to see Joe again and all his other "buddies" (Blake, Heatley & Marleau) from San Jose. He was NOT disappointed and managed to squeeze a few more autographs out of them!!
- Receiving a tour of the Vancouver Canucks dressing room, locker room and work-out area courtesy of our host for the weekend (G. Carnegie, Skills coach for Vancouver and part owner of Total Hockey in Wpg - great guy) and "Red" (the Asst Equipment Manager). Check out the photos of the kids holding Luongo's face mask!
- Watching the game Thursday night and getting the royal treatment once again. This time Dane was visited by Fin (Canucks mascot) who delivered him a bag of Canucks "stuff", however we likely ticked that mascot off when he saw Dane all decked out in Sharks gear. Next was the camera person putting Dane on the jumbo tron with his Sharks stuff (greeted by some boos from the GM Place fans). After the game we had VIP passes and went down to where the players come out. We didn't see any more Sharks (they lost 3-2) but we managed to snag many autographs from Canucks for the back of a new jersey the organization gave him. Most notably was getting "Lou's" and many of the former Moose players' autographs (Grabner and Burrows to name a couple).
- Skating at GM Place Friday morning with the Skills Coach. It was so neat to see Dane on the "big show" ice. He got a special surprise when Ryan Kesler (a Canuck star who had just signed a 6 year $30 million contract THAT morning) joined them for the skate. He passed Dane the puck and played 1-1 keep away. Our son thought this was pretty cool and was topped only by Kesler snapping the end of his stick off, autographing it and giving it to Dane!
- Watching a second game at GM Place - Canucks vs. Red Wings on Saturday night (Hockey Night in Canada televised this game). It was a great offensive game - Detroit took 54 shots on Luongo and the game went to OT. We were all hoping for a shoot-out but the Red Wings scored with .2 seconds left (yes, .2) to win 4-3. And our Dane is no dummy - he made sure he wore his Canucks gear to this game and cheered for the home team! We went down to the locker area again post-game and met a couple of Wpg Red Wings, D. Meech & D. Helm.
- Seeing and taking their photo with "Mr. Hockey". For you die-hard Team Canada fans, you will recognize this guy from all the games at the Olympics. He is like Dancin' Gabe ... a true celebrity in Vancouver now.
- Believe it or not, we did do a few other things at that didn't involve hockey. To Ashley's delight, we visited the Olympic Superstore and purchased all (yes ALL) of the Olympic mascots and those snazzy red Olympic mitts. We all walked to the Cauldron and took some photos. We also took the kids to Stanley Park and the Aquarium (very cool place) and to Granville Island. Granville was a bit of a "bust" and it was SUCH fun listening to Dane tell me that day was by far "the worst of the trip so far". That all changed once we got to the hockey game of course. We were put up at a great hotel (Westin) just five blocks from GM Place and the staff treated us royally!
- We had a nice visit with my Aunt who lives in Vancouver. She took some fantastic photos of the kids while they were together and we've included one of them that we love by the ocean.

All in all it was a great NHL Experience and we are VERY grateful to the Believe in the Goal Foundation. It sounds like Dane and Todd Davison share the "edge" factor and that makes the fact they chose our son all the more special. The Foundation is starting to prepare for the big "Sizzlin Summer Showdown" hockey game (to be held August 12) and to give back, I have offered to assist with that event. It sounds like they are going to put my "journalism" background to use and I'm looking forward to the challenge. It will be a good tune-up before I head back to work in mid-September.

Medical stuff ... Dane had his once-a-month chemo today and is now on his five day steroid boost (lucky us). The kids are on spring break this week and we are planning to escape for a couple days to ... wait for it ... watch another Sharks game (this time in Minni). We are staying with my dear friend Tricia and her family (she has been a faithful blog follower since I started jabbering last January). We are looking forward to introducing Clare to her new baby (born last July).

Dane is feeling really well right now and we are thoroughly enjoying our healthy son. He is going to be physically busy this spring ... 3x3 hockey, flag football and swimming lessons. They are all just once a week but the variety will be good for his stamina. We are loving his new "look" - check out those curls!!!
We know Dane and our entire family have been treated unbelievably well these past few months by Children's Wish and Believe. They have given the kids magical gifts that we could not have provided and Dirk and I are so appreciative of both organizations. We wish we could turn back time and make him not have leukemia, but that's not in our power. So we continue to deal with the hand we have been dealt and focus on the positives. It's what keeps us moving forward.
Take care everyone ... Janie & Dirk

Monday, March 15, 2010

"A Nice Break"

Good evening,

I just realized it's been nearly three weeks since I posted an entry, so without planning it, I gave myself quite the break from writing. More importantly though, Dane is experiencing a wonderful break from the Cancer Clinic. For the first time since he started treatment last January, he gets a ... wait for it ... four week reprieve in between appointments. His last hospital visit was March 3 (at PDU for a spinal tap and IV chemo) and he does not have to go back until March 30. Dane's neutrophils have rebounded tremendously in the past few weeks, in fact they were 4.2 on March 2. This is a number we could only dream about before. We are hopeful that now that he has "kicked" the cold virus he's had for pretty much the entire winter his counts will remain in this range so we can stay on the once-a-month visit schedule. The downside to fewer appts is we miss our Cancer Clinic friends, but we are making sure we stay up-to-date with emails and visits.
We can tell Dane's hemoglobin is in the normal range as he's pretty fired up about life in general these days. He's still in the midst of hockey playoffs and tomorrow night his team plays in the B-side quarter final. They are one of the last six teams standing and he had a really good weekend. All of the games are "sudden death" now so it's pretty intense. You need earplugs to watch these games. Yep, it's partly my yelling but we've also got some fans who have whipped up some pretty amazing noise makers. The past couple of weeks have been great fun. Ashley's season came to an end on a very positive note two weekends ago. Her team won the Consolation final in a nail biter - a 2-1 victory. She played like a wall on defence and now has a two month break before her spring league starts.
We are all gearing up for a trip to Vancouver soon to watch a couple more NHL games. As I reported a while back, the Believe in the Goal organization is sending Dane to watch the Sharks play the Canucks. He is PUMPED and ready to meet Joe again. We've had to explain the meaning of the word stalker to him though as we're getting a tad worried Joe is going to think we are following him. He will be armed with lots more "stuff" for him to sign, particularly now that he's a gold-medal winner. I'll report on the trip's happenings in my next entry.
Clare continues to "wow" us on a daily basis. She is full of energy and personality and is getting into everything! She discovered the stairs yesterday ... I am NOT ready for that phase yet. She now tips the scale at 22.5 lbs and is 30 inches tall. She remains a bit of a "monster" but she has definitely slowed down - thank goodness. She already weighs as much Ashley & Dane did at 16 months!
Until next time, take care everyone - Janie & Dirk

Thursday, February 25, 2010

"Odds & Ends" - Follow-up

To my Manitoba Hydro friends ...
If you interested in supporting my endeavor to walk 20 kms in June as part of CancerCare Manitoba's "Challenge for Life", please contact my good friend Roxanne Kaplan at 360-7614. She has graciously offered to collect any pledges made by MH employees so they can be matched by the Corporation. I would have done this myself, however I'm still on parental leave whilst I care for our little Ms. Clare and not physically (or mentally I should add) at work.
To Rox, a big thank you!!!
Janie

Sunday, February 21, 2010

"Odds & Ends"

I'm taking advantage of a quiet house and posting a second blog update this afternoon. I've been having a harder time getting to my typing lately and apparently I'm letting some of Dane's "followers" down . Not to mention any names, but there is this guy I refer to as the "gentle giant" who sometimes frequents the CancerClinic and he is pretty disappointed in my mini case of "writer's block" these past few weeks. So GR, this is for you!

Odds & Ends #1 - When I posted the update about our trip, I forgot to mention that when we were walking to the "Shark Tank", we passed these two women giving away beaded necklaces. The proceeds of their efforts were going to charity, and how do you think we reacted when we saw the sign for that evening's charity ... The Leukemia & Lymphoma Society. If that wasn't fate, I don't know what is. We bought Ashley a teal and black necklace which she wore well during the hockey game.

Odds & Ends #2 - I haven't talked too much about our little Ms. Clare lately so here's a quick update. She turned nine months on Feb 11 and although her growth has slowed down, she's still at about the 90th percentile for height & weight (29 inches tall and 22 pounds). She is very active now, crawling all around the house and pulling herself up to stand on furniture, etc. Her sleeping habits are still pretty nasty, but I've been reading the "Baby Whisperer" and am seeing some slight improvements. I can only hope that by the time I go back to work she is sleeping more soundly. I've attached a couple of recent photos. Who do you think she looks like now?? We've been hearing that a lot of folks think she resembles Dane a bit more lately.

Odds & Ends #3 - I figure I better pre-empt the ribbing I'm going to take on this blog from my life-long and much younger pal "Jodi" (as she refers to herself) and fess up now that in short order, I will be hitting my milestone b-day. I'm trying not to think about it all that much, however I am giving myself a special gift. I have decided to enter the CancerCare Manitoba Foundation's "Challenge for Life" as my 40th present to me. Essentially it's me kicking myself in the butt to get more active this year while at the same time raising funds for this amazing organization that has come to mean so VERY much to our family. And given I know she was going to publicy tease me, I told Jodes she had to enter with me! So on June 12, she and I will lace up our shoes and hit the pavement for 20 kms. I've got some serious work to do between now and then but I am really looking forward to the challenge. I've created a personal page for my fundraising that you can access from the following link if you are interested. Thank you!


Until next time, take care - Janie & Dirk

"The Good Ol' Hockey Game"

Well, it's three hours to puck drop time and excitement is building in our house. Nope, it's not one of the kids' games, but rather Canada vs. USA at the Olympics. Dane has been diligently watching this week, especially when "his" Sharks are playing ... Thornton, Heatley and Marleau. He was VERY pleased that they accounted for both of Canada's regulation goals in the game against Switzerland on Thursday. Big Joe T. has had some good chances - we just need him to capitalize and Dane will really be cheering. GO CANADA GO!!!
Now for the latest on the kids hockey & ringette. Dane's team went on a good run last week and won the gold medal at an outdoor tournament. The boys were all pumped and proud of their efforts. They've been having a bit of a tougher time in the league though and finished the regular season with a 5-4 loss yesterday. Ashley's team ended the season on a positive note, going 2-0-1 in their last three games. Playoffs begin next weekend for both of them so we'll be running from one rink to another. Many thanks to all their fans who cheered them on yesterday ... your support is much appreciated. I know to some of you we may have seemed a bit over zealous, however hockey is really our best barometer of Dane's energy level. Until yesterday's game he had really been flying the past couple of weeks and this warms both our hearts. When he's flat, it's tough on us because it's a reminder that unlike a "normal" kid (one without leukemia), Dane's system reacts more acutely to fatigue. It's kind of hard to describe to people, but we know instantly whether he's got "zip" in a particular game. When he doesn't, our internal anxiety rises pretty quickly and we just want to see our son skate like we know his body can when it's well. We are not focused on goals or wins, we just love watching him play the game he loves because it helps ease the pain we feel about him having cancer.
Onto something more positive ... we received word that Dane's trip to Vancouver to watch two more NHL games is a go. The Believe in the Goal Foundation has made arrangements for Dirk & Dane to fly to Vancouver in mid-March to watch the Canucks play the Sharks and then the Red Wings. Ashley, Clare and I will be joining them and we are very excited!
Dane's neutrophils have rebounded nicely in the past couple of weeks and at his appointment on Tuesday they were 2.81. I can't remember the last time they were this high and we are hopeful it's a sign he has kicked this winter's cold virus once and for all. He is back on 100% dosages of his chemo medicines and on March 1, he will complete his second 84 day Maintenance treatment cycle. So, two down and about nine more cycles to go!
As always, thanks for tuning into our happenings - Janie & Dirk

Tuesday, February 2, 2010

"(Trip) Pictures Tell a Thousand Words"

We're back! Our "wish" trip to California last week was amazing. We packed a ton of fun into eight days and trying to capture it all in one written post is a daunting task so I've decided to let our pictures tell most of the story ...If you are 10 and 8, Disneyland is the place to be on a sunny January California day. We managed to get Ashley & Dane to stand still long enough to pose for this photo as we set out to explore the wonderful world of make believe, roller coasters and Disney paraphernalia.

One of the many benefits of being a "wish" family is we received special guest privileges at Disneyland. We had a pass that took us to the front of the line and this enabled us to by-pass any long waits and ride the various roller coasters multiple times. The kids thought this was awesome and they convinced both Dirk and I to accompany them on most of the "great" rides. This is us post-Matterhorn, a "tame" roller coaster in Fantasy land. The fact I'm smiling and my sunglasses are still on is a sign I managed this ride without too much fear! The kids were invincible and their favorites in no particular order were Thunder Mountain, Space Mountain and Splash Mountain. The Mountain references are a good tip-off there were hills, drops and turns on all these rides and that brought many smiles to their faces.

After eight long hours we managed to convince these two that it was time to call it a wrap. Of course day one at Disney wouldn't have been complete without a couple of sticky lollipops to keep them occupied on the shuttle bus back to our hotel. Thank goodness Clare was too young to join them or we would have been covered head to toe in sugar!

Not to be left out of the action, our Ms. Clare took to the rides on day two at Disney. This was her one-and-only solo trip and as you can see from the smile, she is having a ball!

No trip to California Adventure (adjacent to Disneyland) would be complete without getting absolutely soaked on the "Grizzly River Run". The kids put their guest pass to good use and shot the rapids three times. Good thing this mom was thinking and brought rain coats and a change of pants. Now only if we'd remembered some dry shoes ...

So if you are a "pre-teen" (yikes) who is about to celebrate her 10th birthday on this trip, how do you pass up the chance to pose so elegantly with the letter that starts your name? Ashley looks mighty comfy perched on that "A" and check out the tam - it was a "must" purchase for our accessory gal!


Here is a little test for all you faithful readers. If it's 65 degrees and clear blue sky, what do Winnipegers do every morning in California? If you guessed go for a dip in the outdoor pool/hot tub at the hotel, you would be right. What do native Californians do in those same temps? If you guessed join us, sorry that is the incorrect answer. If you guessed wear mitts, earmuffs, boots and multiple layers, you win the prize. We are sure people thought we were absolutely crazy ... we swam almost every morning in the heated pool (82 degrees or so) and we had the place all to ourselves. Our last day in Anaheim we actually suntanned at 10:30 am and it was heavenly. It's amazing how warm 65 degrees feels when you've had snow for three months! We only had a few hours of rain all week and that was a huge relief as the week before California experienced the "storm of the century".

Of course we had to visit Universal Studios as well. After two full days at Disney we were all pretty tired, but we managed to get on some interesting rides (The Simpsons was the kids' favorite) and see behind the scenes of a major movie/tv studio. Late afternoon rain put an end to our day a little earlier than expected, however that gave us the chance to do some "outlet" shopping (good) and experience our first & only LA traffic jam (bad).

The reason we made the trip of course ... January 28, 2010 - Sharks vs. Blackhawks at the HP Pavillion. An awesome place to watch a hockey game and we couldn't have picked a better match-up, as first place was on the line. You could feel the intensity in the air and our Dane was soooo excited. We had to force him to eat a few bites of his dinner as he didn't want to miss one minute of the action. He was riveted to his seat from the pre-game skate to the final second of OT!

Our "Hockey Day in the USA" started out on a great note ... we were able to sneak into the Blackhawks pre-game practice courtesy of Cam Barker, a Winnipeger and fine young man. We had the rink pretty much to ourselves and after they finished skating, we waited for Cam and he presented Dane with two autographed game sticks. One was his and the other was J. Toews. It was pretty interesting checking these two items on the plane for the ride home. Rest assured they will be featured prominently in our refurbished basement soon (renos are currently in progress).

"Sharky" the SJ mascot paid Dane a special visit midway through the first period and as you can see, he "ate" him up. While waiting for a stop in play, he sat on his lap and gave him a bag of goodies courtesy of the Sharks organization ... included were a Thornton jersey, a new cap and a pennant. We LOVE this picture!

Another surprise for Dane ... the opportunity to ride on the Sharks zamboni between the 2nd & 3rd periods. We figured he would be shy, but given the smile on his face while he's viewing himself on the jumbotron, his tendency toward "stage fright" appears to be gone!


The event Dane has been waiting for this past year ... the chance to meet his idol, Joe Thornton. WOW - what a moment when Joe came into the Sharks' locker room and shook Dane's hand. As his parents we were overcome with happiness for him as we know this is truly his "wish" come true. He never wavered on what he wanted to do with his one chance and we told Joe how thinking of this day helped him fight his leukemia battle. We were very impressed with JT and the special attention he gave Dane.

The big surprise of the evening ... not only did Dane meet Joe T., he also met Patrick Marleau (next to Joe), Dany Heatley (next to Dirk) and Rob Blake (SJ Captain). They were all wonderful and signed every puck, mini-stick, jersey and poster the two kids presented them. Joe, Patrick and Dany will form one line on the Cdn Olympic team so Dane's meeting was pretty "star filled". The comic relief came when Dane asked Joe what line he would be on in the Olympics and Joe said "I'll be playing with Patrick and Dany". Dane said I know but what line ... "1st, 2nd, etc." talk about pressure! Joe laughed and said "I hope we just get to play".

So as captured in these photos, that is our trip in a nutshell. The adjustment to life back at home has been not too bad and we were back at the Clinic yesterday for Dane's monthly IV treatment. His neutrophil count was very, very low before the trip so we had to suspend his chemo pills for the past two weeks (first time for us in Maintenance). He is back on 100% dosages and we'll see how his levels hold-up.

Until next time, take care and enjoy this post. Hopefully it doesn't crash your systems - Janie and Dirk

Sunday, January 17, 2010

"Wishes do come true"

Good evening,


I just have time for a quick entry tonight because we are a very busy household these days. Dane's "wish" to watch a San Jose hockey game and meet "big" Joe Thornton has been granted and we are on a plane to California later this week. As you can likely imagine, the excitement factor is kicking into high gear and everyone is really looking forward to this trip (ok, so Clare isn't sure what is going on but that's kind of been the story of her life thus far).

We will be staying in Anaheim for several days (lets hope the torrential rain forecast for this week ends before we arrive) and then we'll move to San Jose. We plan to take in as much of Cali as we can, including Disneyland, Universal Studios, shopping (this is MY part of the trip), hockey, the ocean and general sightseeing. This experience has been a long time coming and it will be very nice for Ashley as we will be away around her birthday.

Dane gets to spend "one-on-one" time with Joe T. and we're pretty sure the Sharks have some neat stuff in store for him. It will truly be a once in a lifetime moment and many photos will be taken to capture it for his "fan base"!

The after effects of his Jan 5 chemo treatment & steroid boost have worn off and he's feeling great. Although his team had a tough outing against a very strong team this past Friday night, he played what was likely his best game of the season. He skated hard and fast and carried the puck more than he has all year. It was wonderful to see. Aside from the pills he takes at home every day, he is "med" free until early February and this bodes well for the trip.

A catch-up item from my last post ... I forgot to include the link from the story that ran on CTV on X-mas Eve re: the Believe in the Goal Foundation. So if you missed the story, please just click the link below and it's the second story.

http://winnipeg.ctv.ca/sports/

So, until we return from Cali, take care everyone ... Janie, Dirk, Ashley, Dane & Clare

Wednesday, January 6, 2010

"365 Days"

Today is the day. January 6, 2009 - Dane's oncologist confirms he has leukemia and our lives would never be the same again. As is the case with most traumatic events, I have been having "flashbacks" to this time last year. Although it has been 365 days, I can still vividly remember meetings, phone calls, procedures, needles, medical explanations, visits from family and friends, and lots and lots of tears. Fortunately I can also remember many tender moments shared with Dane and Ashley - lots of hugs and kisses and reassuring words. So in the spirit of the"glass half full (vs. empty) philosophy", I have compiled the first "top 10" list of Dane's blog. Here goes ...
Top 10 Highlights of the Past 365 Days (in no particular order because that would be way too difficult)
#10 - Dane's oncologist tells us that although Dane has leukemia, it's the "best" kind to get - very common (as common as childhood cancer is) and very treatable.
#9 - Children's Wish Foundation. Everything about this organization is fantastic and our entire family has been treated very well. As of earlier today it seems like some progress is occurring on Dane's request to meet Joe Thornton so we'll keep folks posted (Ashley is sooo looking forward to a warm trip this winter to make-up for cancelling Disney last year).
#8 - Ongoing and amazing support of our family and friends. People in our lives have been outstanding this past year and as we have said many times in this blog - thank you so very much!
#7 - After a mere two weeks of treatment, Dane's body kicks the leukemia's @#*# and he is declared an "Early Rapid Responder". This means he is in remission and his prognosis is even better than when first diagnosed.
#6 - After an eight month hiatus from the sport he loves, Dane steps back on the ice in September for camp. After a slow start, he gains speed, strength and stamina and is successful in his attempt to play 8A1 Hockey. Halfway through the season he is passionate about the game again and asking to go on our backyard outdoor rink on a daily basis.
#5 - CancerCare Manitoba. The doctors, nurses, child life therapists, pharmacists and Foundation staff are wonderful. Our family has been treated with nothing but care and compassion throughout this difficult journey and we are so grateful. We "give back" by agreeing to be the face of the Holiday Appeal campaign and this leads to many great things - CTV Sports Star and NHL Experience.
#4 - Dane's body puts up a very good fight and infection germs are kept at bay all year long. This results in zero re-hospitalizations in 2009 and that is great news for everyone.
#3 - Believe in the Goal Foundation. The surprise news on Christmas Eve that Dane has been chosen for the NHL Experience was an exciting day for our entire family. We are very grateful to Shawn Churchill (CTV), the Believe in the Goal Board and Bob & Barb Davison (Todd's parents).
#2 - The gem amongst the pokes, prods, nausea, blood transfusions, etc. of our visits to the Clinic are our new and dear friends. To the following kids and their families - Hayden, Jessie R., Jessie L., Nick, Zoe and of course our special Kendra - thank you for friendship and kindness.
#1 - May 11, 2009 - Clare Avery Hantscher is born healthy & very happy. Not much more to say about this event as it speaks for itself. It was a real highlight this past year and even though I said at the beginning that these are in no particular order, this one is hard to beat!
Here's to hoping the 2010 highlight reel is filled with many great moments, stories and memories.
Take care - Janie & Dirk
p.s. I just about forgot the darn medical stuff. Dane had his monthly IV chemo yesterday and all went well. His neutrophils are just high enough to stay at 100% of his pill dosages (they were .82 yesterday) and the doctor figures they are borderline because he is fighting yet another cold (he just can't seem to stay away from them right now). His hemoglobin is at 130 and that's great news for energy & attitude!

Friday, January 1, 2010

"Welcome 2010"

Happy New Year! We hope that you enjoyed your evening last night. We celebrated the beginning of this new decade with our very good friends "The Martin 5". It was casual and cozy and just the right pace for our family. One of the highlights was watching Canada beat USA 5-4 in a shootout - it was a very exciting game.
The past holiday week has been filled with lots of activities - special times spent with friends and family and many hockey games. Dane's team ended up coming 5th out of 14 teams in the X-mas tourney and they even won a trophy. The last game featured a tight score and a victory lap by all the players. Dane was a bit behind the pack as he was too busy trying to find his new hockey gloves in the pile in the middle of the ice. It was quite funny to watch him pick up gloves and throw them back into the pile until he found his pair.
The "Believe in the Goal" euphoria has subsided for a bit. I'm sure it will pick up again once the trip planning begins. We are still waiting to hear from the Wish Foundation re: a trip to San Jose ... we are hopeful an answer will come soon because we are hoping to go away later in January. The story that aired X-mas Eve is no longer on CTV's website but I am trying to get an electronic copy soon so I can post it on the blog.
The past few days have been pretty tough. Kendra's funeral was Wednesday and it was very emotional. It was a beautiful service - a fitting tribute to a young woman who was beautiful inside and out. I think I've found it particularly tough because even though it's been 11 years, I can still vividly remember the intense sadness we felt in the days, weeks and months after Cole died. My heart aches that her family has to feel such sadness and I find my mind drifting to them often. Dane's next appt at the Clinic is on Tuesday and it will be hard to see the construction on "Kendra's Room". When it is finished though it will be a wonderful legacy.
The kids are calling because we promised we'd play a game to end what has been a very lazy Jan 1. It is exactly one year ago this week that Dane was diagnosed with leukemia - what a year it has been. It has been filled with many hard and scary moments, but at the same time, much joy (aka Clare of course). As a family we are relieved to say good-bye to 2009 and welcome what we hope and anticipate will be a gentler 2010.
All our best - Janie and Dirk